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Tuesday, July 13, 2010

Special Specialist appointment


Today we met with Dr. Anthony Magit, who I call the "special specialist" because the specialist Dr. Douglas Brewster referred us to this Ear Nose and Throat guy, who has had allot of experience with Cystic hygroma. He was very friendly, calm and knowledgeable. He is currently treating two children with the same ailments and their treatments are reacting well.

He is the guy that anyone could hope for so our prayers have been answered by having him take care of Franki. He showed us the MRI pictures and the big bulge under tongue is not even the largest one, there is one on the left side of her throat thats larger, they can't tell how many but each bulge has several little cysts inside, what they are going to do is drain the big ones, then using an ultrasound machine syringe alcohol and a detergent through her neck/muscles etc directly into each cyst, this should shrink them.

This is a lengthy procedure that will be done over time in pieces, possibly even up to two years. He says they cant assure they wont come back and because there are legs that split off, they never really go away forever they just no longer are large or effect anything, they just sit there dormant. He is going to set up her first procedure in about a month. She will be put under anesthesia each time and have to stay two or more days overnight in hospital each time they do this, the cysts will swell up larger before they get smaller and there is no telling how long each one will take to go way down.

He also mentioned she will have no side effects and she continue eating as normal every time she gets discharged from the hospital each time after 2 or 3 days. He has full confidence she will respond well and forsee's no problems. Please continue to pray for her that everything will go smoothly.

I am not even sure I absorbed it all, I should have had a dictaphone, thank goodness I did not have to go alone, hubby as there the whole time.

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